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SUPPORT GROUPS and information sites:

American Porphyria Foundation
73 Saddlebrook Lane
Houston TX 77024 USA
713 266-9617
e-mail: porphyrus@aol.com
Home Page: http://www.porphyriafoundation.com/

CLIMB (Children Living with Inherited Metabolic Diseases)
The Quadrangle
Crewe Hall
Weston Road
Crewe
Cheshire, CW1- 6UR
United Kingdom
(127) 0 2-50221
e-mail: Lesley@climb.org.uk
Home Page: http://www.CLIMB.org.uk

National Digestive Diseases Information Clearinghouse - NDDIC
2 Information Way
Bethesda, MD 20892--3570 USA
(301) 654-3810
(800) 891-5389
e-mail: nddic@info.niddk.nih.gov
Home Page: http://digestive.niddk.nih.gov/

Metabolic Information Network (PHYSICIAN CALLS ONLY)
P.O. Box 670847
Dallas, TX 75367--0847 USA
(214) 696-2188
(800) 945-2188
e-mail: mizesg@ix.netcom.com

Home Page: http://www.geneticalliance.org/diseaseinfo/displayorganization.asp?orgname=Metabolic+Information+Network

Medic Alert Foundation
2323 Colorado Avenue
Turlock CA 95382
209 668-3333
800 432-5378
e-mail: info@geneticalliance.org
Home Page: http://www.medicalert.org

Canadian Porphyria Foundation, Inc.
P.O. Box 1206
Manitoba Intl ROJ 1HO
2044762800
e-mail: porphyria@cpf-inc.ca
Home Page: http://www.cpf-inc.ca/

Healthopedia.com

http://www.healthopedia.com/porphyria/

E-Mail: http://www.healthopedia.com/about/contact.html

 

Nicholas Ashby Donation Account US Bank (714-529-3983) Or just walk into any US Bank   Make a Donation through Paypal:

If mailing please send to: Nicholas Ashby Donation Account P.O. Box 1817 Lewiston, Idaho 83501