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Nicholas'
Journal January 2007
January
31, 2007 Wednesday - (Day +786) Outpatient - (Day 744)
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Nicholas
seems to be doing pretty good right now. We think that he had a
adverse reaction to his blood pressure medicine that he went on last
Wednesday. He developed a kind of a nervous twich in his neck and
shoulder area along with a small rash on his neck that comes and
goes. We talked to his doctor in Spokane and was taken right off the
medicine. It has calmed down a lot, but is still there sometimes. He
is running and playing very well, and still does not lack any
energy, lol... He is eating like a horse and probably still growing.
He has grown 3" taller in 5 weeks and gained 6 lbs, wow. He is
amazing. Please continue to pray for Nicholas, look over him, and
heal the reaction to the medicine that he had.
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January
28, 2007 Sunday - (Day +783) Outpatient - (Day 741)
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It was a
nice day and the sun was out. Nicholas wanted to take his bike to
the skate park so off we went. He had a blast. He has grown so much
that he has almost outgrown his bike. We are sure glad that winter
is almost over. We still go to feed the ducks and the river is also
thawing out. Please pray for Nicholas and his health.
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January
27, 2007 Saturday - (Day +782) Outpatient - (Day 740)
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Nicholas'
favorite balloon is flying on top of the car dealer. He looks for
this everyday and gets excited when it is there. It has not been
flying for a while now so I told him it was sleeping for the winter.
It is warming up everyday and the days are getting longer, thank
goodness Spring is on the way. Please pray for Nicholas and his
health.
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January
26, 2007 Friday - (Day +781) Outpatient - (Day 739)
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Nicholas and
I got to town today and he wanted to go feed the ducks. He said they
were hungry. So after we settled in away we went to the river to
feed the ducks and I do think that the winter has taken a little
toll on them, they act sooooo hungry and love to see Nicholas when
we get there. They all come up on the dock to get the bread that we
bring for them. It is a habit and fun, also just part of our daily
routine. Please pray for our little Nicholas and his health.
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January
23, 2007 Tuesday - (Day +778) Outpatient - (Day 736)
WHITE
BLOOD CELLS = 9,700
RED BLOOD HEMATOCRIT = 46,800
PLATELET = 471,000
IGG = 576
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We are on
our way to Spokane for a check up. Please pray for a great one. I
will update later.
UPDATE: Upon arriving this morning they wanted to
put a IV in and we said that it was a check up and not necessary. We
then found out that the doctor wanted to pull 100ML of blood out to
help his liver get rid on the high iron that has been stored by the
many transfusions in the past of blood products. His iron levels
have been high for a long time and so has his blood pressure, so the
fix is for his body to naturally get rid of the iron by taking out
some of his blood. With a hematocrit of 46,800 this is not going to
hurt by any means. The doctor has also put him back on a high blood
pressure medicine (Norvask) to bring it down a little. The doctors
say that when the iron levels drop in his liver his blood pressure
will also come down. So, this is the goal. His immunization shots
will be given here by his local pediatrician. So, we are still
moving forward. On our way home today Nicholas took a nap and when
he woke up he looked pale and did not feel good. A little while
later with his Mom he got sick and threw up all over the car. He was
car sick.:(:(:( Later when I tucked him into bed he was back to
himself, ate a big dinner and was getting ready for bed. What a
day.... Please pray for Nicholas and his health.
P.S. I forgot to add, Nicholas gained 6 lbs in the
last 5 weeks. WOW!!!
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January
22, 2007 Monday - (Day +777) Outpatient - (Day 735)
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Here he is
playing on his X-Box. He came right home and wanted to put in his
new skateboard game. We are getting ready to go to Spokane for a
blood work check up. He feels great so pray that the numbers come
back as good as he feels. We will be on the road very early.
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January
19, 2007 Friday - (Day +774) Outpatient - (Day 732)
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Here is his
"Cat Face."
He is so funny. His cousin used to do this also a few years ago.
Nicholas went back to Moms for a few days and then on Tuesday he has
a doctors appointment in Spokane to check his blood. He is doing
great and is full of energy. Please pray that his appointment goes
well and blood work comes back excellant.
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January
18, 2007 Thursday - (Day +773) Outpatient - (Day 731)
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Nicholas
wanted to post his "Strong Face" today.
He has a "Cat
Face" also, that I will post later. We had a lot of fun today.
We went to feed the ducks and the river is all frozen and the ducks
were way out in the water, so we left bread for the birds. We stayed
in most of the day and played the 360. He loves it. Please pray for
Nicholas and his health. He is doing great.
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January
17, 2007 Wednesday - (Day +772) Outpatient - (Day 730)
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What a
Ham....
Nicholas loves to drink all of my water before he goes to bed. He
laughs when I do not have any more. It is so cute, and he gets a lot
of water in him, so cannot complain. We had a lot of fun today and
will have more tomorrow. Please continue to pray for his great
health.
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January
14, 2007 Sunday - (Day +769) Outpatient - (Day 727)
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Nicholas is
being a ham of course... He is so much fun. We are still inside due
to the cold about 10 degrees. We are getting our workouts in tho
running up and down the hall, and playing the x-box. He is getting
so big and strong... Please pray for our little Nicholas and his
wonderful health.
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January
13, 2007 Saturday - (Day +768) Outpatient - (Day 726)
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It is still
very cold and now snowing....We are having fun in the house playing
games and on the computers. He has being so good and a ham at the
same time. We are ging to watch Motocross on speed in a little while
and then get ready for dinner. Please pray for our little Nicholas
and his very active health.
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January
12, 2007 Friday - (Day +767) Outpatient - (Day 725)
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It Is
COLD!!!!!!
It is 5 deg and -1 at Nicks Moms house, burrrr... and Nicholas
got up at 5:30am...We got some snow yesterday and now it is just
very cold. We will stay in for the day and have fun inside. Please
pray for our little Nicholas and his health.
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January
11, 2007 Thursday - (Day +766) Outpatient - (Day 724)
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Tonight
Nicholas decided that he really liked his Spiderman lamp and wanted
to give it a kiss. "Oh, Spiderman you are so great" he
would say, lol.. When I took the picture Nicholas' eyes matched
Spiderman. He is getting ready to take a bath then to play video
games and off to bed. Please pray for Nicholas and his Spiderman
health.
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January
8, 2007 Monday - (Day +763) Outpatient - (Day 721)
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Nicholas
watched Spiderman last night and wanted to wear his outfit this
morning. He looks at himself in the mirror and acts like he is
Spiderman. He has fun. I chased him down the halls and tickled him.
Even Spiderman cannot hide from Dad, lol.. Please pray for Nicholas
and his health.
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January
7, 2007 Sunday - (Day +762) Outpatient - (Day 720)
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The weather
warmed up (51deg) and the wind stopped blowing. Nicholas and I went
to the skate park and had a blast. He really loves to scoot. He has
done well and is sure growing up fast. Please pray for our little
Nicholas and his health.
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January
6, 2007 Saturday - (Day +761) Outpatient - (Day 719)
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Nicholas has
really been into motorcycles and skateboards this last week or so,
and I mean really. He has wanted to go to the skate park the last
couple days but the sun is out and it is still cold about 42 deg and
the wind is blowing. He went out to ride for a few minutes and had
fun. This spring will be good for him. Please pray that he continues
to stay healthy.
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January
2, 2007 Tuesday - (Day +758) Outpatient - (Day 716)
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Nicholas has
been watching his motorcycle DVD for the last couple days and now he
thinks that he can do some of the same tricks as they do. It has
been cold this winter but I know that he is going to tear it up this
spring. He just cracks me up... Please pray for h health and for his
IGG numbers to keep going up.
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January
1, 2007 Monday - (Day +757) Outpatient - (Day 715)
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Cowabunga!!!
Happy New Year!!!!
Here he is practicing his skate board moves on my ironing board.
He does awesome tricks, lol... He fell asleep at 9:00pm along with
me. We were not much for the party for New Years Eve. Oh well, we
had fun anyway. Please pray for his health.
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Nicholas
Ashby Donation Account
US
Bank (714-529-3983)
Or
just walk into any US Bank
Make
a Donation through Paypal:
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If
mailing please send to:
Nicholas
Ashby Donation Account
P.O.
Box 1817
Lewiston,
Idaho 83501
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If
you would like to send a e-mail to Nicholas click
here.
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