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Nicholas' Journal  September 2006

September 29, 2006 Friday - (Day +664) Outpatient - (Day 621)  

			Nicholas' favorite pj's are his sponge bob ones seem here. He decided to pull them up as far as he could at to act like sponge bob. He looked so funny and even posed for the camera. He was in a great mood today and we are getting ready for the day. Please pray for Nicholas' health.

September 28, 2006 Thursday - (Day +663) Outpatient - (Day 620)  

			Nicholas has found himself a friend a Harrith Park. She is there everyday and plays with him. He woke up this morning and informed me that  he wanted to go to Herrith Park and play with his friends. Of course we were there shortly after lunch and he did not want to leave, but it was time for dinner so we had too. Please continue to pray for Nicholas and his health and hope that he does not need any more IGG.

September 27, 2006 Wednesday - (Day +662) Outpatient - (Day 619)  

			Nicholas had a great day today. We went to the skate park and the play grounds. He ran hard for 3 hours non stop. The weather is a little cooler so it is very nice to be outside. H wanted to wear his favorite Spiderman tee shirt and sweats. He is just doing awesome. Please pray for his health and recovery.

September 26, 2006 Tuesday - (Day +661) Outpatient - (Day 618)  

			Nicholas had another day filled with going out to the park and playing on the equipment. He loves this. Today we visited 2 parks - Airport, and Harreth. Both are awesome and a lot of fun for him. His hair was full of static from going down the slides so much and he was wearing his favorite spiderman outfit.. He was very tired by the end of the day and went to bed at 8:30pm. Please pray for his great health and that he continues to get better and grow.

September 25, 2006 Monday - (Day +660) Outpatient - (Day 617)  

			Nicholas was up and at it at 6:00am. He went right to his motorcycle game and started to play. We played a few games then dad had to work and make breakfast. WE are going to do our usual thing today and will spend most of it outside. The weather is very nice right now (in the 70's), but getting cold in the night. Please pray for Nicholas and his health.

September 24, 2006 Sunday - (Day +659) Outpatient - (Day 616)  

			Here is Nicholas in his new video game maniac shirt. He sure loves to play his nintendo 64. WE had a great dinner and off to bed after "Dog Eat Dog" He went to bed very excited to play video games "tomorrow." He is so cool. Please pray for N icholas and his health.

September 22, 2006 Friday - (Day +657) Outpatient - (Day 614)  

WHITE BLOOD CELLS = 10,300
RED BLOOD HEMATOCRIT = 43,900
PLATELET = 498,000

IGG = 408

			On Our Way to Spokane for a check up Nicholas has a doctors appointment this morning for a IGG check up. He is wearing his new favorite outfit. Please pray that his numbers stay high and that he does not need a infusion. I will update later.  UPDATE: Nicholas' IGG level was 408 so the doctor decided to give him the infusion. Many kids are sick right now with the flu and runny noses, and mom will be in the hospital next week so it is important to keep his numbers high. His baseline was 400 so he was pretty close anyway. His last infusion was 11 weeks ago (July 6, 2006) and the one before that was 7 weeks so his body is holding more on its own. The doctor was also surprised that we have kept him well because of the amount of sick kids as we head into our flu season. His other numbers look great, and he is doing geat. Please pray that Nicholas continues to do well.

September 20, 2006 Wednesday - (Day +655) Outpatient - (Day 612)  

			Nicholas took up a seat on the couch in his car seat. He was playing video games because the weather is rainy and cold here. It did break long enough for him to have a coffee from his favorite stand and feed the ducks. Please pray for Nicholas and high IGG numbers during his doctors appointment in Spokane on Friday.

September 17, 2006 Sunday - (Day +652) Outpatient - (Day 609)  

			Nicholas had a very busy day today. We  went to a new park, and then back to the favorite park he loves so much. We then had lunch, and off to the river to feed the ducks. I took him to his moms this afternoon for a couple days and brought his brother Mitchell back down river with me to go to his dads home. This was a very fun weekend. Please continue to pray for Nicks health.

September 16, 2006 Saturday - (Day +651) Outpatient - (Day 608)  

			We went to airport park today and went down the "big slide." He has not been there since before transplant and I cannot believe that remembered after 2.5 years. He went down the slide like a big boy. He is growing up so fast. He found a friend to play with while we were there and did not want dad to help anymore, and he did not need the help either. :( I cannot believe how fast they grow up. Please continue to pray for Nicks health while we are coming into flu season.

September 15, 2006 Friday - (Day +650) Outpatient - (Day 607)  

                                                                                Orofino Fair This Weekend

Wow, Look at Nicholas. I picked him up today and went to the carnaval. He was so excited. He went on the whale ride, the merry go round , the car ride and also went into the barn to see the "farm animals." He was petting the horse, talking to the cows and looked at the roosters. He came home with a lot of winnings. He played the frog game and won 3 stuffed animals, got a hat from the forest rangers, and just all around had a lot of fun. He has not been to the carnaval since he was 2 years old. I am glad that he can start to enjoy the normal things that kids do. Please continue to pray for Nicholas and his health.

September 11, 2006 Monday - (Day +646) Outpatient - (Day 603)  

			Back to the skate park, off to the river to feed the ducks and going to get a coffee at a new stand. He is very busy this morning. We have had a lot of fun this couple of days and he is going to go to the fair this weekend. He is so excited. He is doing great and growing so fast. Please pray that his IGG levels stay high while he is at the germy fair.

September 10, 2006 Sunday - (Day +645) Outpatient - (Day 602)  

			Nicholas woke up ready to go. We were at the skate park right off the bat and he had a blast. His Mom called so he took a break to tell her all about it and that he was at the skate park. He is getting better all of the time and even more gutsy, lol... Please continue to pray for our little Nicholas who is gowing up so fast.

September 9, 2006 Saturday - (Day +644) Outpatient - (Day 601)  

			Nicholas came over today after having lunch with his brother at granny's. Nicholas has not been to granny's since before his transplant and has asked to go. He is doing great and growing like a weed. We are going out top scooter and then have dinner. Please pray for our little Nicholas and his on-going health.

September 5, 2006 Tuesday - (Day +640) Outpatient - (Day 597)  

WHITE BLOOD CELLS = 11,800
RED BLOOD HEMATOCRIT = 43,900
PLATELET = 466,000

IGG = 487

September 4, 2006 Monday - (Day +639) Outpatient - (Day 596)  

	View Skate Park Movie		Back to the skate park this morning then off to feed the ducks before we went to Nicks moms house. He had a great day and he was very busy. It was a little cooler this morning so we were able to wear his favorite sweats and free style shirts. Please pray for great numbers tomorrow at the doctor.

September 3, 2006 Sunday - (Day +638) Outpatient - (Day 595)  

			Nicholas had a very busy day. He was up at 5:30am and ready to go. He wanted to play his motorcycle DVD and go to the skate park. We ate and got our day started and away we went. He did so good at the skate park going over some of the bumps all by himself. We took his bike also and he did good on it also. Please pray for our little Nicholas who is growing up so fast.

September 2, 2006 Saturday - (Day +637) Outpatient - (Day 594)  

			Nicholas woke up this morning very excited to get out of bed and go play the motorcycle game (his video games) He chose his favorite "Spiderman shirt" and "jean shorts." What a ham bone. The ducks were very talkative today while we were feeding them. He rode his scooter and just had fun outside today. The heat has slower down to a mere 90 deg. Much better than 110deg. Please keep praying for Nicholas' IGG numbers to stay high. We have to be in Spokane at his doctors for another check up on Tuesday.

September 1, 2006 Friday - (Day +636) Outpatient - (Day 593)  

			Nicholas has always liked to play the games on the internet and video games at his moms house. So, Nicks Mom dug out the old Nintendo64 of Mitchells and sent it home with me for the weekend to set up and see if Nick would play it. I put it on the big screen and he has had a blast since. I cannot believe how good he is a video games. He just loves them. We have a gamer on our hands, lol!! Please pray for our little gamer and his health.

 

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