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Nicholas'
Journal June 2006
June
30, 2006 Friday - (Day +574) Outpatient - (Day 531)
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Nicholas was wound tight this afternoon. He asked to bake cookies
all night and after dinner we did. He had so much fun. He loves to
cook. We saved some for tomorrow night too. He was just so excited
today and so full of energy. It is great to see him do so well.
Tomorrow we have a long day planned. Please pray that he continues
to do so well.
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June
29, 2006 Thursday - (Day +573) Outpatient - (Day 530)
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Nicholas was here for the afternoon so Mom could get some things
done. Here he is spinning the wheel and watching his favorite move
Clifford. What a ham...We had so much fun. Please pray for Nicholas
and his continued health.
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June
28, 2006 Wednesday - (Day +572) Outpatient - (Day 529)
WHITE
BLOOD CELLS = 17,800
RED BLOOD HEMATOCRIT = 42,400
PLATELET = 642,000
RETIC
= 2.3
IGG
= 573
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On Our Way to Spokane for a check
up!!!!!
Here we are up at 5:30am in the morning and
getting ready to go to the doctors for a check up. We are going to
drive and will be back later this afternoon. I will update then.
Please pray for great blood counts and a safe drive there and home.
UPDATE
Nicholas did great. His IGG count went down and we
discussed with the doctor about giving it today or waiting a week to
see how far he will drop if any, so we decided to wait and will go
back for another check up next Thursday, and IVIG if he needs it. He
is well above the 400 level that the doctors want him to be for now
and maybe his body will maintain here. We will know more next week.
Please pray for good counts during the next week.
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June
27, 2006 Tuesday - (Day +571) Outpatient - (Day 528)
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Today was a great day. I picked up Nicks
brother Mitchell and went to lunch on our way to meet Nick and
Mom at the fishing store. Nick was so excited. We came home
and played, saw the ducks, and went for a drive to see the
"yellow balloon." Here he is talking to his mom and saying
good night. We all need to get up very early in the morning to go to
Spokane for a IGG check up. He is a wild man so I think that
everything will be good. Please pray for a good check up and his
blood levels are good. |
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June
25, 2006 Sunday - (Day +569) Outpatient - (Day 526)
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The weather has been great and Nicholas has
been able to ride his bike everyday. He loves riding his bike,
rolling down the hills, and just being outside. He is soooooo much
fun and soooo sweet. We are going to do our normal activity today
then off to moms this afternoon. He continues to come up with the
funniest things to say that he makes me laugh. Please pray for our
little Nicholas and his health, great blood, and recovery. |
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June
24, 2006 Saturday - (Day +568) Outpatient - (Day 525)
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Look at him go!!! He loves to roll down the
hill and yell out " Nicholas Ashby" while he is at the top
of the hill. He is so funny. We had a great time. Nicholas kept
going until 9:00pm last night then finally fell asleep, dad too:):).
Nick woke up at 6:30am and we are ready for a new day. Please pray
for Nicholas and his wonderful and outgoing personality and health. |
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June
23, 2006 Friday - (Day +567) Outpatient - (Day 524)
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Nicholas went to bed and fell asleep at 9:00pm and
woke up in high gear at 6:00am. He has been on the go since, ate 2
meals before lunch and now we are going out to see the "spinnies"
and the "yellow balloon." his favorite things to do. We
will be out riding his bike this afternoon as the weather is great
here this time of the year. He helped me make his tater tots this
morning. He loves to cook and help in the kitchen. He is just a ball
of joy and wound tight also. Please continue to pray for our little
guy. |
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June
22, 2006 Thursday - (Day +566) Outpatient - (Day 523)
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After a very long vacation for Dad (4 days) I got
home and went to get Nicholas. I missed him very much. He looks
great and feels great. He has sooooo much energy that I am glad the
weather is good so we can spend it outside. He says the funniest
things just out of the blue and it makes me laugh. Well, we are on
our way outside to roll down the hill then come in to eat dinner.
Please continue to pray for our little Nicholas and his great
health. |
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June
17, 2006 Saturday - (Day +561) Outpatient - (Day 518)
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Nicholas wore his new "Old Navy"
jammies that I bought when we were in Salt lake a while ago. He
decided to wear these instead of "Blues Clues." Nick woke
up and wanted to ride his bike even before he got out of bed. It was
so funny. He rode it down the hall and right on the computer to get
on playhouse Disney - his favorite website. We are going to play
until his Mom and my Mom get here. He is so awesome and doing great.
He is wound up after his 10 hours of sleep and we are going to have
a great day.
I will be leaving to Seattle to go to my Nieces graduation and
will be gone for 5 days. I am having a hard time with the concept of
being away from him for 5 days. I do not think that I have ever been
away for that long:(:( I miss him already. Family is
everything and all needs to be supported. Please pray
for his continued great health and progress.
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June
16, 2006 Friday - (Day +560) Outpatient - (Day 517)
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Nick is here to spend a couple days with me
for Fathers Day before I leave to go to my Nieces graduation and
will be gone for 5 days. We are going to spent the day riding his
bike and rolling down the hill. He loves to do this. He is wound
tight. He is running all over the place. I have never seen him run
so much, down the sidewalk and back numerous times. He has so much
energy. I think that he is going to be a cross country runner
:):):)LOL. He rode his bike this afternoon and rolled down the hill
this evening. He is so awesome. Please pray for his continued great
health.
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June
14, 2006 Wednesday - (Day +558) Outpatient - (Day 515)
WHITE
BLOOD CELLS = 16,000
RED BLOOD HEMATOCRIT = 38,300
PLATELET = 598,000
RETIC
= 3.7
IGG
= 768
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Doctors check
up in Spokane Washington
We were up early in the morning (5:30am) for the 2
hour drive to Spokane Washington and our appointment at 9:00am. He
got right up and was ready to go with breakfast and meds finished by
the time that we left. He played in the playroom, talked to Dr.
Judy, and even showed off a little for her. He has really grown up
since the last time she saw him and is talking now. His IGG level
was 768 and Spokane's baseline is 500. We will be back in 2 weeks to
establish Nicks baseline and see where these numbers go, hopefully
his body maintains this level. We left and went to his favorite stop
McDonalds and went home. The roads were very rainy all the way there
and back so it made for a little slower drive. Please pray that Nick
holds his numbers and our trip in 2 weeks is as good as this one.
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June
13, 2006 Tuesday - (Day +557) Outpatient - (Day 514)
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Nicholas had a great night sleeping
and then wanted to get up, get dressed, ride his bike, and wear his
favorite dump truck shirt. We spent the afternoon outside and the
weather was great. Rain expected for the trip to Spokane tomorrow so
we are getting our fill of outside now. I have not told him yet that
we are going to the doctor tomorrow, but I think he will be ok with
it. Please pray for his numbers to be good and we just come right
back home.
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June
12, 2006 Monday - (Day +556) Outpatient - (Day 513)
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Nicholas had a great weekend camping
and ran like a wild man for 3 days. He was so happy to get to go
camping, be with the motorcycles, brother, the river and so on that
he just had so much fun. He is with me for a couple days then off to
Spokane to get his blood checked on Wednesday for the IGG
Levels. Dr. Judy has not seem him for over 1 year and what a shocker
she will have. He is getting so big. He has gained back his 4 lbs.
that he lost from being sick and then an extra pound. He is eating
great and growing everyday. What a trooper. Please pray for a great
Dr. appointment on Wednesday and his health continues to get better.
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June
9, 2006 Friday - (Day +553) Outpatient - (Day 510)
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Nicholas had a great day today. He woke up
wanting to ride his bike and roll down the hill. He loves it outside
and he will have fun with brother camping this weekend. He is riding
his bike quite a bit again because he feels much better. We should
get the results of the test for C-Diff after the weekend even though
I think that it is gone. Please pray for Nicholas and his health. |
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June
8, 2006 Thursday - (Day +552) Outpatient - (Day 509)
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Nicholas woke up this morning pretty gassy.
He did a lot of gulping. He ate well, and has great energy. We took
a sample in to the doc's today to be tested for C-Diff since we are
a week off medicine. Please pray that it comes back negative for
C-Diff or anything else. We had a lot going on today. He rode his
bike and rolled down the grass hill this afternoon and I could
hardly get him to come in for dinner. He was wound tight this
afternoon, tighter that I think that I have ever seen. When we got
ready to go ride his bike he wanted to wear my shoes and he wanted
me to wear his. It was so funny, he was just ready to go with my
shoes on, but his would not fit my feet so we switched "I
Guess." His Big Dog dump truck shirt is his favorite so I need
to find him another one to wear also. Please pray for Nicholas and
his health. |
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June
7, 2006 Wednesday - (Day +551) Outpatient - (Day 508)
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Nicholas came over to spend a few days with
me and he is doing great. He is eating like a champ and is full
energy. He wanted to go everywhere today, McDonalds, Starbucks,
spinnies, pizza wednesdays, etc...We had a lot of fun. C-Diff seems
to be gone and the reflux also seems to be under control. He is a
lot of fun. I just love him!! Please continue to pray for our little
Nicholas and that we are on a full path to recovery. |
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June
4, 2006 Sunday - (Day +548) Outpatient - (Day 505)
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Nicholas went to his moms today he was
excited to see his brother. He is eating better all of the time and
putting on some of the weight that he lost. We need to make sure the
C-Diff does not come back and he is still gulping. This seems to be
getting worse. We will do some more tests to make sure that
everything is ok and the C-Diff stays gone. Please pray for Nicholas
that the C-diff is gone and his health continues to do well. |
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June
3, 2006 Saturday - (Day +547) Outpatient - (Day 504)
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Nicholas slept 10 hours from 9:00pm -
7:00am this morning and he woke me up with a tickle under my arm
pit. I opened one eye and asked if he was awake and he said
"yes, coffee" We then got out of bed went to the living
room and proceeded to enjoy our morning coffee. He has been on the
go since. His eating is back like it was before this all started. He
ate his cream of wheat all by himself today with no help, and ate
almost all of the bowl with his own spoon. He has been on the
computer, checked e-mail, watched Wiggles and now we are getting
ready to go out for a drive. Please pray for the C-Diff to be gone
and we stay on a very healthy path from now one. |
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June
2, 2006 Friday - (Day +546) Outpatient - (Day 503)
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Nicholas came over yesterday and got right
on my computer. He loves to play his games on the laptop. Little Einstein's
is one of his favorite games on the computer and videos on the
television. He is off the medicine for C-Diff and I think that it is
all gone. He is just on the amoxilicillin that he will always be on
because he has no spleen or Gaul bladder. He is very full of energy
and says the funniest things. His weight is coming back and he is
eating like a champ. Please continue to pray for our little Nicholas
and his health. |
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Nicholas
Ashby Donation Account
US
Bank (714-529-3983)
Or
just walk into any US Bank
Make
a Donation through Paypal:
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If
mailing please send to:
Nicholas
Ashby Donation Account
P.O.
Box 1817
Lewiston,
Idaho 83501 |
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