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Nicholas'
Journal February 2006
February
28, 2006 Tuesday - (Day +452) Outpatient - (Day 409)
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Nicholas came over today feeling better and getting around a little
better on his leg. He probably just bruised it doing his flying
karate chops and landing on his bummm. Even with a gimpy leg he is
so happy. I love him so much. Please continue to pray for our little
Nicholas.
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February
27, 2006 Monday - (Day +451) Outpatient - (Day 408)
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Nicholas had a doctors appointment today. He went from the gulping
on Wed and Thursday to limping so bad that he was crawling to get
around. We called Salt Lake City and they told us that we were
released from them and we need to go see Dr. Ambrosin, Nicks local
pediatrician. They said that he was ok and now they have turned us
over to his local doctor. This is hard to handle since we have had
such a tie to Salt Lake City, but Dr Ambrosin is wonderful and he
actually delivered Nicholas and has been his doctor since birth. We
found out that his gulping is probably a tik from what he has been
through and the leg is that he probably has injured nit from
playing. We are to wrap it and it should be better in 3-5 days. Nick
sat and talked to him the whole time and Dr. Ambrosin just talked
back and smiled. He commented on how good he looks and assured us
that he would be ok. It has been a long time, but his mom and I
still will not let our guard down. Please continue to pray for our
little and getting bigger Nicholas Ashby.
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February
23, 2006 Thursday - (Day +447) Outpatient - (Day 404)
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LOL, Nicholas was so excited that he got to swim in the tub. This
was the first time in over 2 years that he could go swimming because
he does not have his port anymore and his chest is healed. He loved
to swim in his pool when he was 1 and 2 years old, but had to stop
because of the sun and the porphyria. Now that it is gone along with
his port he can swim again. He will have so much fun this summer
swimming, and being outside what he loves to do. Please continue to
pray for our little Nicholas.
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February
22, 2006 Wednesday - (Day +446) Outpatient - (Day 403)
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I picked up Nicholas this afternoon and he wanted to go straight to
McDonalds for a happy meal with a boy toy, he is so cute. So off to
McDonalds to lunch we went. He loves to yell from his car seat his
order, and then politely he says "thanks." We went to
Starbucks then home for the afternoon. He was in a great mood and
very full of it today. He is starting to gulp pretty bad suddenly so
we will call his doctors in Salt Lake City tomorrow and see what we
need to do. Please pray for Nicholas and his continued recovery.
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February
21, 2006 Tuesday - (Day +445) Outpatient - (Day 402)
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Here he is being a ham bone in his tough guy
shirt. He stayed with me for a few hours so Mom and brother could go
to the eye doctor. We just hung out, danced, played, chased,
and tickled. He loves to run up and down my hall while I chase him
and tickle him on the bed. He is just full of energy and life.
Please continue to pray for our little Nicholas.
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February
19, 2006 Sunday - (Day +443) Outpatient - (Day 400)
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Nicholas went to bed last night and was a sleep by
8:00pm. At 4:30am he decided that it was time to get up, went to his
room and got on his bike. I was able to get him back to sleep until
6:15am then the day was on. He was wound and wanted to play. We
drove up to him Moms today so he could play with brother Mitchell.
He really loves his brother. When we arrived he showed me how he
plays motorcycles with "Douglas" on the play station, lol...Nicholas
is so funny. Please continue to pray for Nicholas and his recovery.
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February
18, 2006 Saturday - (Day +442) Outpatient - (Day 399)
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Nicholas has been wound most of the day. He found a new game
on the internet on the dora the explorer - Blues Clues site and it
is a matching game. He really likes it and could not get him away
from it. Here he is ready to go out on our afternoon stroll and get
lunch. Holding the keys and telling me "daddy-o, we ready to
go." So off we went. He is so cool. We have had a lot of fun
today, so off we go. Please continue to pray for our little Nicholas
and his recovery.
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February
17, 2006 Friday - (Day +441) Outpatient - (Day 398)
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Nicholas is still doing great!!! Still dancing and
singing to the Wiggles. We are getting ready for pizza Friday's at
papa Murphy's Pizza. It is very cold here 7deg at night so we have
to stay in the house. Hope Spring comes soon so he can go out and
ride his bike. He loves the outdoors. Please continue to pray for
our little Nichols.
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February
15, 2006 Wednesday - (Day +439) Outpatient - (Day 396)
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Nicholas woke up bright and early this morning and the first thing
that he did was reach under the pillow and find the monies that the
tooth fairy left him. He held it all morning until he started to run
around. He was so excited about it, and now the next one is on its
way out. We can see the top of the new tooth already coming in and
it looks to be white. The doctors keep telling us they would be
black, but so far white. Please continue to pray for our little
nicholas. |
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February
14, 2006 Tuesday - (Day +438) Outpatient - (Day 395)
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Happy Valentines Day |
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Happy Valentines day!!!
Nick came down to hang out with Dad
for a couple of days. What a great Valentines day. We ran and
played, and just had fun. He has had a loose tooth for a few days
now and guess what he lost it, "toofless in wooiston" what
a crack up. He is going to put in under his pillow for the tooth
fairy to leave some money when he goes to bed tonight. He has no
port anymore and just steri-strips. It will be all healed up in
another week. Nick is doing great, but keep the prayers coming for
the immune system to fully build over the next few months. |
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Toothless in Lewiston |
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February
8, 2006 Wednesday - (Day +432) Outpatient - (Day 389)
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Nicholas will have his port
removed today!! Here
we are in salt lake City and we all had a good trip. Nicholas
is leaving for his doctors appointment this morning to get his blood
checked, have a infusion to strengthen his bones, a dentist
appointment, the exit meeting with his doctors to go over all of the
results of his transplant and the results of all of the tests he has
taken in the last 2 visits which is routine at the end of
transplant, and then a scheduled 2:30pm surgery to remove his port. Please
pray for a great appointment, and an easy surgery and recovery for
his port removal. Update!!!
WE
HAVE NUTRAFILLS = pending
WHITE BLOOD CELLS = 9,000
RED BLOOD HEMATOCRIT = 36,300
PLATELET = 391,000
BILLYRUBIN = .2
RETIC
= 1.4
Nicholas
is so awesome!!! He came out of surgery with no port and he was very
mad. The nurses said that sometimes the anesthesia will do that. We
went back to the hotel and about an hour later you would never know
that he just left surgery. He was running and bouncing off the
walls, and we really tried to keep him relaxed, but he just felt
good and was very happy. All of his numbers are normal and we do not
have to go back to Salt Lake City until June, WOW!!! Nicholas will
then receive his first immune shot then the others from there. The
next morning he was very ready to come home, so off to the plane we
went and we were in Lewiston about 4 hours later.
Thank
you to everyone who has helped Nicholas, his doctors, Angel Flight,
Life Flight, etc...for making this bone marrow transplant a success.
Please
pray that he continues to do so well while he is still building up
his immune system.
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February
6, 2006 Monday - (Day +430) Outpatient - (Day 387)
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Nicholas woke up early this morning and proceeded
to help me in the kitchen. We cooked his breakfast and in between
the mess we had a great time. Mom came down to pick him up this
morning, and we are all getting ready for the trip to Salt Lake City
that is scheduled for very early tuesday morning. The plane leaves
at 8:00am for a short 3 hour flight. Please pray for all of us and
also pray for a great recovery from Nicholas' surgery to remove his
port. We will all be back on Thursday.
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February
5, 2006 Sunday - (Day +429) Outpatient - (Day 386)
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We woke up today to a very sunny and bright day.
It is 52 degrees and beautiful. Nicholas was antsy to get outside
and play. He kept telling me that it was time for me to take a
shower to go out and ride his bike since about 9:00am. He is definitely
an outdoor kid. Nicholas has had fun all day and we are going to get
ready for dinner. Please pray for Nicholas' health and that the trip
to Salt Lake City, and surgery goes well. |
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February
4, 2006 Saturday - (Day +428) Outpatient - (Day 385)
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Here is Nicholas kicking back on the couch having
some water after a can of tomato soup and getting ready for bed. He
was so full of energy and feels great. I think I will go to bed with
him and get ready for tomorrow. We will go to Salt Lake City next
week to have our final check up and his surgery to have his port
removed. Please pray that everything goes well. |
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February
1, 2006 Wednesday - (Day +425) Outpatient - (Day 382)
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Nicholas woke up on the go this morning. He likes
to play his guitar, sing, and dance. Maybe he will be the next
American Idol, lol... The weather is warming up and he is looking
forward to the Spring when he can spend his time outside. It is too
cold and too many germs right now. He is really doing awesome!!
Please pray for Nicholas as we head to Salt Lake City next week to
have his port removed. |
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Nicholas
Ashby Donation Account
US
Bank (714-529-3983)
Or
just walk into any US Bank
Make
a Donation through Paypal:
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If
mailing please send to:
Nicholas
Ashby Donation Account
P.O.
Box 1817
Lewiston,
Idaho 83501 |
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