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Nicholas'
Journal October 2005
October
30, 2005 Sunday - (Day +332) Outpatient - (Day 289)
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Nicholas and I spent the
morning eating and carving the pumpkin for halloween. He really had
fun this year and even helped to clean and carve it and did not mind
the slimy stuff on his hands. We had a picnic and went for a drive
to see the big trains. Nicholas spent the rest of the day riding his
bike and playing with the football. He wanted to stay outside all
day and did not want to come in the house. He is a true outdoor kid.
The long winter weather is going to be too cold so we will have to
find things to do inside. I am re-doing his room so when he comes
over his room will change. Nicholas' health is awesome. Please pray
for the continued great health for Nicholas.
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October
29, 2005 Saturday - (Day +331) Outpatient - (Day 288)
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Isn't
he Cute!!!
Here he is in his new outfit that we bought at Old Navy last week
while we were in Salt Lake City. We went in there for bouncy balls
and came out with new clothes. He did not want to take it off today,
he even wore it around the house. He has been doing great all
weekend, full of energy, eating, and just having fun. Please
continue to pray for his continued great health.
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October
28, 2005 Friday - (Day +330) Outpatient - (Day 287)
Doctors
say that the antibodies are weakening!!!
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The doctors called today and said that he
antibodies that caused the hemolisis are weakening, in fact that
they are hard to find. The test 2 weeks ago showed that the
antibodies started to weaken, so we are on the road to these antibodies
going away or burning themselves out. Nicholas looks, acts, and
feels better everyday, in fact if you did not know what he has been
through you would have no idea. Please pray for the antibodies to
keep on weakening. Nicholas is here for the weekend
and went trick or treating to the families houses. He then came over
here and trick or treated me. He is so cute in his dinosaur costume
and wants to wear it all of the time. The boys are going to party
all weekend. Please pray for Nicholas to continue to do so well. |
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October
26, 2005 Wednesday - (Day +328) Outpatient - (Day 285)
WE
HAVE NUTRAFILLS = 5,900
WHITE BLOOD CELLS = 9,700
RED BLOOD HEMATOCRIT = 40,300
PLATELET = 199,000
BILLYRUBIN = .3
RETIC
= 3.0
| Nicholas had another great appointment and we are on
our way home. His numbers are awesome and are all in the normal
range. He is still eating like a horse so the doctors do not want to
make any substantial changes due to the steroid taper that he is on.
He should be off the steroids by the end of December so now it is
time to make sure that he eats, and stays very healthy. The retic
count is up a little that shows that he is still hemolizing, but the
last coombs test confirmed that the antibodies are getting weaker
and all of the other numbers are great. The antibodies are what was
formed that caused the hemolisis. With this getting weaker we are on
a great road. He can still hemolize as long as these antibodies are
there, and if he gets sick with a viral infection of some sort so we
need to keep him healthy. The doctors have informed us that he
should stay away from little kids due to the sicknesses that they
can have, and we can re-evaluate this again around March of next
year after his immunizations, and the RSV season ends. Nicholas
still runs like a wild man and feels awesome. Please pray that the
antibodies continue to get weaker. |
October
25, 2005 Tuesday - (Day +327) Outpatient - (Day 284)
Back
in Salt Lake City For a check up!!!
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Nicholas and mom left this morning and had Angel
Flight take them down here to Salt Lake City, and I left early this
morning to meet them here and to get ready for his appointment. He
has been running like a wild man all afternoon until he sat down to
play on my computer. His color has been coming and going for the
last 10 days, but he feels great and has lots of energy, so I think
he will be fine. His appointment is at 9:00am and we hope to be on
the road back home by 11:00am. Please pray for his numbers to be
good and the hemolisis to go away. |
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October
21, 2005 Friday - (Day +323) Outpatient - (Day 280)
| Nicholas started speech therapy this morning so we
got up early and drove up to moms house. On our way we stopped and
drove through Starbucks where he proceded to call out his order from
the car seat. I did not think that the girls were going to stop
laughing. They knew it was Nicholas and had his drink waiting for
him when we got to the window. They gave him a drink and a starbucks
sticker, Nick was so thrilled. We then started the drive to moms for
his appointment which we are calling school. He did great!! The one
therapist was sick so she did not come, but Pam was very nice and
gave us some pointers to help Nicholas along. She said that he is
doing great and not to worry. Nicholas just made my whole day and
weekend when he gave me my birthday present this morning and said
"happy birthday daddy." It was a bag with candles and a
card. I will burn them in the house tomorrow. It was so precious,
Thank you very much Nicholas. Please continue to pray for his
recovery. We have another appointment in Salt Lake City on Tuesday.
Hugs and kisses Nicholas. |
October
20, 2005 Thursday - (Day +322) Outpatient - (Day 279)
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As usual Nicholas was a riot and a joy all day. We
played football, rode his trike, and just ran all day until he
wore himself out at 9:00pm and fell asleep and snored all night. I
never knew that such a little boy could snore so loud, it was
precious. The fall weather here is still nice during the day so he
can stay outside and play if he wants too. As you can see here, he
also helped me cook dinner.He loves to help in the kitchen
especially when he says "all by self" It is so funny.
Please continue to pray for Nicholas and his health.
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October
19, 2005 Wednesday - (Day +321) Outpatient - (Day 278)
| Nicholas came down from Moms today to spend a couple
of days with dad. He had taken a little nap on his way so we were up
late playing. He can take just a little power nap and it just
recharges his batteries. He finally fell asleep at 11:00pm when the
news started. We had a great time playing with his cars and
dancing to Wiggles. He is so much fun, but I wish that I had as much
energy that he does. Please continue to pray for Nicholas and his
ongoing health. |
October
16, 2005 Sunday - (Day +318) Outpatient - (Day 275)
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Nicholas had a great day today running and playing
outside. The fall weather here is still awesome with cool nights and
warm days. Nicholas had fun with lots of family today spending time
with his grandma and great grandma on dads side (grandma GG, and
grandma Dee) and then off to spend time with Dougs family. He will
also get to spend time with his brother this week and also his
grandma and grandpa (Mary Ann's mom and dad). He loves to spend time
with friends and family. He is quite the social butterfly. Please
continue to pray for his recovery.
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October
15, 2005 Saturday - (Day +317) Outpatient - (Day 274)
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Nicholas has been a blast today. He woke up
wanting to go outside and ride his bike and has been on the go ever
since. He has eaten well, and drank a lot of fluids also. I think
that he is going to float away, but it is what he needs or the
feeding tube could be put back in and we do not want that. Other
than that he is awesome. We are on our way back outside to play.
Please continue to pray for his recovery.
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October
14, 2005 Friday - (Day +316) Outpatient - (Day 273)
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LOOK, NO TUBE!!!!! Here is
Nicholas relaxing and getting ready to go to bed after a long day of
playing, and he is saying his prayer to his mom on the phone. It is
great that his tube is gone and he is also doing a great job of
drinking enough fluids. He feels great and is still a wild man.
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October
12, 2005 Wednesday - (Day +314) Outpatient - (Day 271)
WE
HAVE NUTRAFILLS = 8,600
WHITE BLOOD CELLS = 12,100
RED BLOOD HEMATOCRIT = 40,600
PLATELET = 225,000
BILLYRUBIN = .3
RETIC
= 2.8
| Nicholas had a great Dr. Appointment today. All of is
numbers went up. The retic count is still at 2.8 with 0 being all
gone, but his red blood cell went up. This is good. He is holding
his hemotocrit well into the normal range and he feels good with all
of that new great oxygen floating around in his body. His nutrafills
and his white cells are elevated which shows that he is trying to
fight something off like a cold or viral infection, but for now he
is fighting it off and doing well. Nicholas received a large bag of
IVIG yesterday which will help his immune system stay strong. He has
lost his feeding tube and now we have to make sure that he drinks a
lot of fluids to keep his liver and kidneys hydrated. We also
have to make sure that he continues to eat well and stay full to
keep him strong and healthy. We are running fluids through his port
at night to help out with the fluid intake, but NO feeding tube on
his face anymore, yeah!!! His steroid taper will continue and the
doc's say that Nicholas should be done and off the steroids by late
December or early January. He is doing so great. Please continue to
pray for this great and successful recovery from this very hard bone
marrow transplant. |
October
11, 2005 Tuesday - (Day +313) Outpatient - (Day 270)
In
Salt Lake City having fun on the day before doc appt!!!
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Here is Nicholas tearing it up on the day before
we have the appointment. We will be in the doctors office tomorrow
at 9:00am until we go home. He is so full of energy and color I know
that we will get to go home. Nick has been saying all afternoon
"just a quick check up!!" He is so cute. Well, got to get
some sleep and get ready for the big day tomorrow. Please pray that
his blood continues to get better.
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October
10, 2005 Monday - (Day +312) Outpatient - (Day 269)
On
Our Way Back to Salt Lake City For Check Up!!!
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Nicholas has so much red color it is unbelievable.
I have not ever seen so much color in his skin. I know that his
tests will turn out great with his doctors appointment on Wednesday
morning. We are getting ready to leave now. Mom and Nick will fly on
Angel flight and I will drive there and meet them at the airport.
Please pray that our bundle of joy will be back home in a couple of
days with the hemolisis lower or gone, and the red blood cell count
higher.
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October
7, 2005 Friday - (Day +309) Outpatient - (Day 266)
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Nicholas and I had a great day. We ran some
errands and then I took him home to his moms for a few days. He is
very full of energy and life in general. It is so wonderful to have
him feeling so well. Please keep him in your prayers. We will be in
Salt Lake City on Tuesday for a wednesday visit. Please pray that
his blood keeps on doing well and we get to come home again.
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October
6, 2005 Thursday - (Day +308) Outpatient - (Day 265)
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I never knew some little guy could feel so great
and have sooooo much energy!!! I swear, he is going to be a cross
country track star someday. He woke up running and never stopped
until he went to bed tonight. He is a "wild man" on a
mission. Nicholas had a great day today and he is eating better
everyday. Please pray for the continued success of his transplant.
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October
5, 2005 Wednesday - (Day +307) Outpatient - (Day 264)
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Nicholas came here today just wound tight. He has
so much energy and is running through the house. He word his Oscar
the Grouch coat and it is just adorable. We are going to eat, play
and watch videos for the next few days. Please pray for Nicholas to
continue to do so well.
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October
2, 2005 Sunday - (Day +304) Outpatient - (Day 261)
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Nicholas had a great night of sleep and woke up
bright and early 6:45am in high gear. He was running down the hall
before he even had his morning coffee. Nicks mom called this morning
to check up on him and he was singing and dancing to Thomas the
Train. It was so cute I had to take a picture. He wants to go
outside and ride his bike already probably because it is not raining
and the sun is out. He has eaten great all weekend, the best ever in
the last year. He pretty much ate all day yesterday, and this
morning also. Well, we are going outside to play. Please pray that
he continues to do so well.
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October
1, 2005 Saturday - (Day +303) Outpatient - (Day 260)
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Who is the
programmer here??
It was a rainy day today so we stayed in and
played. Nicholas has a lot of fun on my computer watching playhouse
Disney, and wiggles. His favorite is the Bear In The Big Blue House
and dances to the Mombo. What a riot he is. He has loved the
computer since day one. His energy was the highest that it has been,
maybe because it was raining and we could not go out. Please pray
that he continues to do great and we stay home.
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Nicholas
Ashby Donation Account
US
Bank (714-529-3983)
Or
just walk into any US Bank
Make
a Donation through Paypal:
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If
mailing please send to:
Nicholas
Ashby Donation Account
P.O.
Box 1817
Lewiston,
Idaho 83501 |
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